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Vacations can be relaxing, rejuvenating, exciting, and wonderful. But when you have a chronic illness, well, vacations can be something else entirely. As much as we wish it weren’t so, chronic illness doesn’t take a vacation. No matter how many frequent flyer miles we have, or how terrific it is to see friends and family,…

In the aftermath of life crises, loss, or a new diagnosis, people often tell us “take your time.” Indeed, we need time to digest what has happened and how it will affect our lives going forward. But we might also hear, “it’s too soon…” or “don’t you think it’s time you…” and these questions, often…

So, with three major life crises occurring within days of each other, and these having followed on the heels of a major lupus flare and significant medicine changes, I have a totally new perspective on that familiar throw-away line, “Have a great day!” Right up there with, “Have an awesome day!” and closely related to…

Ah! If only we could control our illness and pain! At least then we might be able to pick and choose the times and days when these awful challenges could stay in the background, corralled, quieted. But, unfortunately, much like Hans Brinker who tried to stop leaks in the dike by plugging them with his…
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