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At some point in a life with chronic illness and pain, we feel as if we’ve failed. Failed at keeping healthier. Failed at following doctor’s orders. Failed at relationships. Failed at life. No matter how many reassurances we get from friends and family, and no matter how much we tell ourselves that there are “extenuating…

When I was first diagnosed with lupus, I asked my doctor if she thought that joining a support group would be a good idea for me. She hesitated, then said, “No. There will be people who are depressed, negative, and very, very ill. You don’t need that kind of atmosphere.” I was surprised. From what…

As I  mentioned in a previous post, I am going to focus  this Alzheimer’s disease Awareness and Education Month on the role and work of the caregiver.  These amazing men and women (and some younger people) are in the trenches daily, nightly, and they give of their hearts so much that they often don’t think…

So often, I hear people who have chronic illness say, “I want a life!” or “I don’t even have a life!” I understand what they mean. All of us experience that wrenching away from what we have enjoyed or found comfort in. Cherished activities, relationships, meaningful work. And it can be really tough to see…
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