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Good Days...Bad Days With Maureen Pratt

Everybody’s happy! Everybody’s active! Everybody’s…NOT! When you don’t feel well, the struggle to make something, anything, good of a day can be exhausting and frustrating and, well, quite frankly, impossible. And yet, between those who say, “You have to have a positive attitude,” and those who declare, “It’s all in your mind,” you might feel…

Last week, some friends of mine participated in a lupus event, and they invited me to come with them. I cannot tell you how wonderful it was to see their caring in action. Truly, the benefit of being enveloped by people who accept and care about you is priceless! I know there are many lupus…

When I was diagnosed with lupus, I found it extremely helpful to immediately organize all the information, appointments, and other things pertaining to life with the diagnosis. That, then, was my “Coping Skill # 1.” Next, I set about finding out as much as I could about lupus, and especially how it was affecting me.…

I’m behind on my blog postings, again! Not because I didn’t want to put fingers to keyboard. Oh, no. Yesterday, the power in my neighborhood went out. Four times! My exercise consisted of walking around to reset my clocks – four times! And, I had to recreate work that I’d been typing into my computer…

Before this Lupus Awareness Month gets too far underway, I wanted to highlight a few activities that will be taking place to educate, encourage, and raise funds for research. I realize that budgets can get stretched and energy sapped easily by too much involvement in  volunteerism for any cause, but given the numbers (at least…

When you are diagnosed with lupus, you have to absorb a lot of information in a brief period of time. Lupus is a very complex disease; even if your case is mild and you do not have to take any medication, there is still a lot to learn about things you can do to stay…

The first significant symptom that I had that indicated something was seriously wrong was that my hair began coming out of my scalp in thick, cylindrical clumps, leaving behind smooth, round bald patches from which no further hair would grow. The first time this happened, I was sitting at my desk, working, and idly twirling…

One of the most confounding things for many people when they first hear the term lupus is, “Why is it called ‘lupus?'” The name doesn’t resonate with people today; it doesn’t seem to describe any kind of body part or disease process. Or, does it? The word “lupus” is Latin for “wolf.” Back in the…

May is Lupus Awareness Month, and during this time, I’ll be blogging frequently about aspects of the disease, living with it, and coping with it. I realize my personal experience is unique; each person with lupus has his or her own particular set of symptoms, manifestations, and treatment protocols, as well as attitudes and coping…

Never say “give up!” That’s one of my mottos for life with lupus. The flare that was stirred up after I had to go off one of my lupus meds has also made me extremely sun- and fluorescent light sensitive, which made it difficult for me to spend much time writing over the past couple…
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