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Last week, I wrote a post for Motherlode called “Is it Harder to Have a Child with Down Syndrome?” Many readers (only some of whom actually have children with Down syndrome) responded with a resounding, “YES!” and many comments implied that once Penny is an adult, we will begin to see her as a burden,…

I’ve written before about how I hope and pray for Penny that she will live a “full” life, even if the fullness comes in unconventional ways (Full or Functional?). The idea of a “full life” came up in a number of comments on Motherlode last week, and most people used the phrase to describe the…

I’ve found myself in the center of a squall this past week. A squall of my own making. When I wrote about my choice not to screen the baby in my womb for Down syndrome, I didn’t expect it to draw any attention other than readers of this blog. But Lisa Belkin, of the New…

Jenni Newbury writes about life with a younger brother with Down syndrome.  I don’t remember life before Jason was born. I imagine I enjoyed my two years as an only child, but I simply have no recollection of life without him. The memories I do have include:pulling Jason across our tile floor to hear him…
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