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When Penny first received a diagnosis of Down syndrome nearly five years ago, I was worried. I worried that she wouldn’t learn and that her health would be compromised and that she would live a difficult life. Then I found out about Early Intervention, a program for children with special needs from birth to three-years…

I’m sometimes skeptical of news stories about individuals with Down syndrome. I wonder whether the individuals are really being celebrated for who they are or if telling a heart-warming story about the kid with the disability who overcomes the odds is really just a way of making the rest of us feel good without actually…

We’ve always tried to talk about Down syndrome as a fact of life in our family. We wanted to make sure it wasn’t a taboo subject so that our kids never felt as though they needed to feel ashamed or scared or that they weren’t allowed to ask questions about it. It comes up most…

I have a new opinion piece that was published yesterday in the Hartford Courant: Who Decides ‘Defective?’  about a new process for in vitro fertilization. It begins: Researchers recently announced a new method for in vitro fertilization. The technical term for the process is chromosome aneuploidy screening, and it triples the chances — from 30 percent…
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